Built from a journey
no patient should
have to walk alone.
Advokit empowers you with the education, advocacy skills, and patient-centric tools to own your health at every point of care.
The heart behind Advokit.
For over a decade, I lived in the shadow of a mystery.
While in grad school, just as the job hunt was heating up, my body started breaking down. A slow progression of symptoms began to hijack my life — turning simple errands into hurdles and forcing aside dreams and ambition in the face of uncertainty.
Year after year, life got harder. I had been diagnosed with PCOS at 16, Sjögren’s Disease at 18, and EDS and POTS at 30. Still, some things weren't adding up, and I remained diligent in my search for answers.
By 2025, I hit a point of disability and desperation that led me to take leave from my career and throw every ounce of energy I had left into figuring this mystery out. I quite literally begged for the MRI that would finally unlock the help I needed.
Turning pain into purpose.
An important part of my healing process has been a deep reflection on what worked and what didn't as I tried to navigate appointments on my own.
If there's one thing I learned from my own journey to diagnosis, it's that you cannot take a passive role in your own healthcare — and you really must advocate for yourself.
I don't want any other patient to walk away from an appointment feeling unheard, overwhelmed, or lost. So I created Advokit to be the partner I wish I had in my pocket from day one of the journey.
But what does advocacy actually look like?
For me, it was learning a skillset.
- Knowing your story and health timeline.
- Going into appointments with a goal and plan.
- Taking backup to help me remember my next steps.
- Maximizing every minute of short appointment times to go deeper with my doctor.
Advokit has all the tools to help you advocate for yourself.
You've got this!
Your friend,
You shouldn't have to walk in alone.
Download Advokit and walk into your next visit feeling prepared, confident, and ready to speak up for yourself.
On Android? Join the waitlist
More from Neelam…
This project started with Neelam’s own years-long struggle navigating the healthcare system. Learn more about the journey to diagnosis of acromegaly in this post.